Friday, October 19, 2012

The spurs that hang around!

It has been my own personal experience that after multiple surgeries to remove the infected tissue there are micro spurs that hang out and wait to grow and become active again. So, the endo is never fully gotten. I just wanted you to all beware of this.

Monday, October 8, 2012

There can be a gift given with Endometriosis

I wanted to let my fellow women know not to give up on having a child or children. I say this because I was told that I was unable to conceive due to two things, one, because the Endo was very advanced and two, the medication I was given for treatment sent me into early menapause. When I was 23 I gave birth to a healthy baby girl who the doctors thought would never develop due to the treatments and for the damage to my uterus from having Endo at that time over three years, and therefore they would have to medically remove the fetus from my womb but, none of that happened and she's now 9. However, understand that you will need more bed rest than the average pregnant woman due to the uterus being weak and when out wear a maternity belt to help in releaseing pressure off the uterus. So, it's not over no matter what the Doctors say because your Faith and Hope out weighs the can nots.

If surgery is needed which is the best method?

I've been thinking about how and why are gynogologist using the Robotic surgery verses the Bikini cut to remove the female organs? I question how these organs can be removed through such tiny icisions...I believe it's because I've encountered several women who indicated after being told that they were having Robotic surgery ended up having the Binki cut or vaginal surgery due to certain orgains couldn't be removed Robotically so, they ended up having three to five incisions verses one straight line. I'm glad my surgeon did the Bikini verses Robotic; I've had Robotic to burn cells of Endo and was told it would be "less invasive" but to me the pain/recovery was more intense, it could've been due to how many surgeries I had, had prior. However, if had to do it again Robotics would never be a choice. I say all this because if you're a woman who has had many abdominal surgeries for Endo/Cervical Cancer Robotics may not be a wise choice but dicuss it in great depth with your Doctor.

Wednesday, October 3, 2012

Is Endometriosis ever really gone!

 After having your uterus, cervix, tubes and ovaries removed so that the Endometriosis won't grow back; research over the years has indicated it can grow back and attack the lungs, heart and even travel to the brain. So, this disease attacks the soft tissue organs in our bodies. As we hope for it not spreading it is a possibilty. I wrote this so that all my fellow women suffering from this disease will and are well informed due to your doctor may not tell you all the ends and outs. Please note this is not to freak you out because walking this path is stressful enough, I only again want to inform.
If you have any information that is new research or  old please share also feel to post comments.

Monday, October 1, 2012

Endometriosis and Cervical Cancer

Do you ever think that someone will ever come with a cure for this painful desease? Does anyone feel that the treatments last for a moment and the pain/heavy bleeding returns?

For the woman who have or had cervical cancer do you believe that the procedures and treatments are invasive or not really? Would you rather have the cervix removed versus saving it and undergoing treatments that may or may not work?

I am asking these questions because the last two always ran through my mind before my cervix was removed. The first question I am constantly asking myself, because there are so many of us suffering from this desease which no doctor seems to know how it comes about and how to cure it..... only ways to somewhat treat it.

Please reach out and share your thoughts.